Invisible Child Brief | Children's HeartLink
“Globally, only a handful of countries have the capacity to diagnose — let alone address — heart disease in children. Their cardiac health needs are invisible to the health system and when another illness arises, it can be worsened by their underlying heart disease […] Unless the burden of congenital heart disease is recognized, the child with heart disease will remain the health system’s invisible child.”
Published by Children’s HeartLink as part of a four part series on childhood heart disease and the global health agenda, “A Case for the Invisible Child” is a policy brief which addresses the burden of congenital heart disease and resource constraints faced by children and families in low-income countries.
In this brief, authors discuss the challenges surrounding pediatric cardiac surveillance, diagnosis, primary health care support, and surgery services, and calls on the international community to include childhood heart disease in the upcoming Sustainable Development agenda.
The brief also highlights the work of a Children’s HeartLink partner in Kochi, India, Amrita Institute of Medical Sciences (AIMS) to provide on-site training and capacity building support to a childhood heart disease program focused on treating patients regardless of families’ economic status.